Sunday, March 20, 2016

A small victory

In our new found world, today was a day to celebrate.  We have all been anxious to start chemo as soon as possible because of the speed rate of the tumor. First thing this morning, they did another x-ray of his lungs and decide that even though there was not really improvement, we would proceed with the chemo anyway because he did not have pneumonia. This was a step in the right direction.

The pain from his back has significantly decreased and is mostly very sore from such an extensive surgery. It was most evident today because he was able to pull himself into a seated position much more easily, and he even got out of bed a few times and took a few steps. Even though he was only able to walk 5 feet with support, it was a major improvement. In addition, his mood has returned to normal, and his agitation is less. We are celebrating.

We waited all day for the chemo to be prepared. Apparently, there are over 50 types of chemo, and hundreds of derivatives and mixtures. As it got closer to administering it, he was a little more anxious. His first and foremost concern is losing his hair. We talked about getting a wig if it made him more comfortable, and he insisted that I take photos of each side of his head so we could find a wig with the exact same color and texture as his. He told me he's like his hair dresser to cut it in the exact same style as now. He even joked that he'd never have bed head again. I was pinching myself that his spirit was back.

He also asked me a lot of questions regarding how this happened. He asked if it was something he did or didn't do and was it his fault. I am so thankful he is asking these things so we can help him process all of this. I, of course, assured him it was nothing he could have done and his nurse gave him a lesson on cells. He loved his science lesson and felt much better.

The nursing staff is amazing with him and prepares him for each little step along the way. He did have a pretty good stalking technique to receiving his first dose. About 30 minutes before we began, he asked if we could play monopoly. First time he asked to do something the entire time we've been here. I am sure he calculated the fact that monopoly is by far the longest game ever. It wasn't a coincidence I am sure.

Around 6 pm, he received the first dose. It dropped in for about 3 hours. They do everything they can to manage the side effects. So far so good.

We are on our way!!!

14 comments:

  1. Sending love and hope Noah landed on Park place!

    ReplyDelete
  2. You're really on the way to healing now. What great news that Noah is starting to show signs of humor and playfulness. How funny about the Monopoly. How far you have all come in a week?! Unbelievable! Robin, you give us such a vivid picture of all that is going on. Thank you. This different website doesn't send a message to check your entries like the other one did. But I look forward to reading your entries, so I just keep checking on my own. So relieved to hear how far you've all come in this short amount of time. Sending continual wishes for your strength and stamina. Noah is a brave boy and I know he's going to get through this journey in the best possible ways. You are all working so hard to make sure of this! You are all so lucky to have each other.

    ReplyDelete
  3. Sound like progress is being made ! So glad to hear. Thank you for sharing with all of us ... you are all constantly on my mind and I am sending you much love and wishes for solid healing and an easy chemo process. Much love.. xxooSheri

    ReplyDelete
  4. Robin, I'm Becky snells sister and I've been closely following Noah's journey so far. I am so devistated for your family that you are going through this but so glad to hear about Noah's progress! What a fighter!!!! I will continue to pray for you all, daily. My two children have put Noah in their nightly prayers, as well. Hang in there and continue to update us! And tell noah that bald is cool!! Look at all the famous basketball players!

    ReplyDelete
  5. So happy to hear about the little victories! My thoughts are with you.

    ReplyDelete
  6. Dear Robin and Adam,
    We were so saddened and needless to say, shocked to hear about Noah on Friday. We are relieved that his form of cancer is very treatable, and that you are on your way to a positive outcome. You are both very strong and caring people. Keep positive and don't lose your spirit. I am relieved to read this latest post. Our thoughts and prayers are with you all.
    XO Donna and Steve Pilcher

    ReplyDelete
  7. Dear Robin and Adam,
    Thank you for sharing your journey. The Beltons are profusely praying and sending well wishes for good news down the road. Know you are surrounded by friends near and far, old and new. And thank God for your pediatric friend.
    Xoxo
    Heidi, Brad and Bridget

    ReplyDelete
  8. Thanks for sharing your journey, and go get 'em Noah. One day at a time. Adam, we're thinking of you and your family during this time. Please let us know if we can do anything.

    - Kevin and Maggie Rinow

    ReplyDelete
  9. Thank you Kevin! Means a lot to us!

    Adam

    ReplyDelete
  10. Dear Robin & Adam
    I just heard of Noah's illness today. I'm so sorry for all you are going through. Robin, I texted you before I knew all these details - I know you have your hands full. We are thinking of you all. Huge virtual hug - Claudia

    ReplyDelete
  11. may you all stay strong through this journey... sending my prayers!

    ReplyDelete
  12. may you all stay strong through this journey... sending prayers!

    ReplyDelete
  13. We continue to keep you in our hearts and prayers!
    From Nathan S. and Family

    ReplyDelete